A sick little girl who is caught in the middle of bureacracy

Sarah Murnaghan, Fran Murnaghan, Janet Murnaghan

THERE IS AN UPDATE TO THIS STORY FROM THE DELCO TIMES: http://www.delcotimes.com/articles/2013/06/05/news/doc51aeaddb96a36764417551.txt

According to Philly.com, the parents of a 10-year-old Newtown Square girl have asked a federal judge to step in and order U.S. health officials to change organ-donation rules in order to get the little girl a lung transplant she needs to survive.

Now there have been plenty of arguments surrounding the situation. Some people blame Obama, others blame the conservatives, some blame the government in general and the Department of Health and Human Services and some say there are kids just as sick.

Well, I would say I wouldn’t want to be the person to tell the parents of Sarah Murnaghan that due to rules and regulations, a kid who is 12 can’t get lungs donated by an adult donor so, sorry but your child is going to die.

I do understand that there needs to be rules and processes in the medical world otherwise it would be chaos. But when you get down to where someone is gravely ill and there are medical ways to save them exceptions need to be made. Like this case for example.

If there are indeed three other children like Sarah in CHOP who could benefit from adult organ donors then why not change the rules? The medical experts say that utilizing an adult lung for a child as young as 12 isn’t the problem it once was. If so, then let’s help all of them.

I have been lucky enough to have children who aren’t seriously ill like Sarah. I’m not sure what I would do if faced with that situation. It sort of reminds me of the 2002 movie John Q when the dad played by Denzel Washington takes the hospital’s ER hostage until someone agrees to perform a heart transplant. The problem in John Q was that the dad’s insurance wouldn’t pay for the transplant. Of course that was a time in history when it was cool to beat up on the HMOs.

Little Sarah Murnaghan’s problem is about the rules, not the insurance. But the frustration must be just as bad although Sarah’s parents have taken to social media, the media in general, protests and lobbying efforts to save their child.

I guess what has bothered me is the backlash. Why do people want to bash this family? I have never met the family but I applaud their efforts. Who wouldn’t do absolutely anything they could to save their child? This isn’t a goldfish we’re talking about, it’s someone’s daughter. And sure there are others who need transplants but I have to agree that we need to help those who are the most sick first. It sure sounds like Sarah’s clock is ticking.

U.S. Health and Human Services Secretary Kathleen Sebelius is caught in the middle of this one. She is also getting slammed but I’m not so sure it’s her call. However, it’s apparent to me at least that she wants nothing to do with the firestorm created in this situation. Honestly, I’m not so sure I wouldn’t feel the same way. No matter what she would do or not do, she will be the villain.

So at this point it seems like the little girl’s fate is in the hands of U.S. District Judge Michael M. Baylson. He can make a ruling that would enjoin HHS from enforcing the rule about children 12 and under.

I hope he does that. It would help save the life of a little girl and really it would get Secretary Sebelius off the hook. Sounds like a win-win to me.

— Andy Hachadorian

About fromtheeditorchair

I am the editor of the Daily Local News.
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One Response to A sick little girl who is caught in the middle of bureacracy

  1. Kim R. says:

    Praying for this little girl and her family. It is horrible that in the year 2013, rules like this apply. We hope the US District Judge does the right thing so that other families will not have to live through a nightmare such as this one.

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